What I hate Options

[Jayna]

Hard to decide what I hate most about this illness today:

= not knowing if I'm 'sick sick' or 'only' have a different combination of CFS symptoms (and whether I can remember having them before and they'll clear up on their own, or whether I'm imagining I remember, and also whether these symptoms need watching so that, when I eventually go to a dr, I can tell them accurately how long I've had the new symptoms)

- not knowing if this is the start of another long downhill slide or just a minor blip in an otherwise reasonably healthy month.

- watching my oldest daughter do the push-crash thing and being unable to tell if she's having true post-exertional malaise or is simply 'normal tired' but too dumb to rest up when she should, and thus gets frequent colds and other bugs.

All of these are related in different ways to my fears. If I were truly free of fearing the worst, I would be not as stressed about any of them.

[Crelly09]

That is how I feel. I am always afraid that when some new symptom shows up, I don't know if I should just attribute it to the CFIDS, or should I go to the doctor yet again, to make sure it isn't something more serious? One of the newest problems is a complete inability to tolerate the heat. We have been getting temps in the mid to high nineties, lately, and I find that if I go out and do the simplest errand, I am exhausted for hours, with accompanying flu like symptoms. I feel really isolated from the rest of the world, having to keep indoors near the A/C.